So fed up of those that make decisions, not understanding the knock-on effect of those decisions….

DLA reapplication done in Nov, only awarded William with ‘middle rate’ for personal care AGAIN. Fuming. How much more care do I need to do aside from all day and night to get higher rate? Telephone call made after I got the letter after work today, demanded they relook at it, emailed his consultants for even more evidence. Just ludicrous. I’d love the person who made the decision to walk my shoes for 24 hours and see.

Taxi – all going so well until 1 week ago when Herts CC decided W needs to pick up someone else, so he needs to be picked up 20 mins earlier every day. That’s us up at 6am as we have to do all his care before pick up…

Another email after work to tell them he’s been crying at school and upset due to the extra early get up.

All I can say is FFS and give me a fucking break life.