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My Boy, Duchenne & Me

Not just life as a mother, but an unexpected one as a mother of a son with Duchenne Muscular Dystrophy

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Tag: daughter

3 years ago today

3 years ago today

January 25, 2019January 25, 2019 Jo Eames1 Comment

To my daughter Phoebe. Your brother was diagnosed 3 years ago and I wrote all about my feelings of diagnosis back then and since in my blog – My Boy Duchenne & Me. Those feelings don’t mention you all too much, even though you were only 8 months old, but you were and are there… Continue reading 3 years ago today

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Defending William Against Duchenne

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