4 years into this journey – a journey no one could ever imagine unless they walk the steps we do each and every day. I read back on my blog that I wrote in the days leading up to William’s diagnosis, the affects of how a simple telephone call can change the world as you… Continue reading 4 years on
To my daughter Phoebe. Your brother was diagnosed 3 years ago and I wrote all about my feelings of diagnosis back then and since in my blog – My Boy Duchenne & Me. Those feelings don’t mention you all too much, even though you were only 8 months old, but you were and are there… Continue reading 3 years ago today
So we are now into set 3 of William’s steroids (He’s 10 days on 10 off – thick pen on the calendar is a must) and it’s safe to say I think we made the right decision. That is me and Matt, no doctors really make a decision for you, you have to have it… Continue reading Worth it – I think!