Coping is a word I’ve never really known the meaning of before – but by god that’s all we could do. Hiding your grief for something / someone that’s not even gone, but grieving the future is unexplainable. Is it my fault, do I carry this gene? Why him? Don’t tell me he was chosen… Continue reading 4-6 weeks pass
That first month consisted of no sleep, crying uncontrollably, feeling so helpless and responsible for causing this to my boy. Grieving. True friends started to show, whether a call, many texts, dragging me for a drink, listening, trying to understand. Thank you. I honestly don’t know how we got through this month, if I can… Continue reading Month 1 & our house move
28th January 2016 GOSH – Our first visit Lunch at Giraffe with some of our family – it’s my Dad (Grandpa’s 70th Birthday). Feeling very sick but trying to hide it from everyone. Am sure they all feel the same inside. We arrive to a pretty unwelcoming lobby area (not the GOSH you see on… Continue reading A very long day, a very sad day, a very shocking day
25th January 2016 – One telephone call that changes my world forever. I answer my mobile, a call from a paediatrician who we saw back in December with William for ‘routine tests’. After being asked if I was on my own or someone was with me (I was alone doing the kids lunch after picking… Continue reading One telephone call changes my world
My Boy, Duchenne & Me 